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Families and clinicians prioritised overlapping but different morbidities, but extracorporeal life support and multiple morbidities are particularly important adverse outcomes.
1 Heart and Lung Division, Great Ormond Street Hospital NHS Foundation Trust, London, UK
2 Clinical Operational Research Unit, University College London, London, UK
3 Population, Policy and Practice Programme, UCL Great Ormond Street Institute of Child Health, London, UK
4 Departments of Paediatric Intensive Care, Cardiology and Cardiac Surgery, Evelina London Children’s Hospital, London, UK
5 Departments of Intensive Care and Paediatric Cardiac Surgery, Birmingham Children’s Hospital, Birmingham, UK
6 Departments of Intensive Care and Paediatric Cardiac Surgery, Bristol Royal Hospital for Children, Bristol, UK
7 Paediatric Cardiology Department, Royal Brompton and Harefield NHS Foundation Trust, London, UK
8 Department of Applied Health Research, University College London, London, UK
9 Community Child Health, UCL Great Ormond Street Institute of Child Health, London, UK
10 Department of Intensive care, Royal Hospital for Children, Glasgow, UK
* Corresponding author Email: [email protected]
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