Century recognizes #LupusAwarenessMonth as part of the community dedicated to supporting those with Systemic Lupus Erythematosus. Recently, we hosted a booth at the LuCIN Community Meeting to further educate on the potential of CNTY-101 in #SLE and our planned CALiPSO-1 trial.
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Sometimes you just want to talk to another mom and learn about her experience. Emily is a mom who's willing to talk to you! Emily chose to have her son, Finley, receive a treatment for x-linked hypohidrotic ectodermal dysplasia (XLHED) before he was born and now he's sweating normally! If you or someone you love is a carrier for XLHED and thinking about participating in the Edelife Clinical Trial, watch this video. Emily shares her suggestions based on her experience and offers to answer your questions. #edelife #clinicaltrial #sweatglands #sweating #XLHED
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As we continue our #MyLupus series highlighting the unique experiences of individuals in the lupus community, we introduce you to Kymberli Hill. Kymberli was diagnosed with SLE at 25. She shares this motivational message: " Lupus is an unpredictable everyday battle. Give yourself grace, build a supportive village, be honest, listen to your body, and do your own research. The goal is to live not just to survive lupus.” 💜 #Lupus #SLE #LupusResearch
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What is one of the rarest, most disabling genetic conditions? Fibrodysplasia Ossificans Progressiva (FOP) causes bone to form in muscles, tendons, ligaments and other connective tissues, forming a second skeleton. It’s the only known disease where an organ system turns into another. An international association hopes to fund a cure while raising awareness and advocating for individuals and families affected by FOP. To learn more, visit https://www.ifopa.org/ #FOP #FOPAwareness #RareDisease #RareDiseaseAgency #HavasHealthandYou
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We support #WorldMEDay and would like to thank everyone living with #MyalgicEncephalomyelitis who's been able to participate in research and share their data. We couldn't perform our research without you. You are the power behind each and every one of our discoveries, which we hope will lead to faster and better diagnosis and treatment options. #pwME #MyalgicE #MECFS #MEAwarenessDay https://lnkd.in/eK_DsRQ8
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Senior Lecturer @ Birmingham Newman | Primary Physical Education Expert | Creator of the SHARP PE Principles | Children’s physical activity and Cystic Fibrosis
The key points from my latest podcast episode with Nathan Walker summarised perfectly by Simon Scarborough. Take a read for considering how we can provide effective inclusion for children in PE and especially for those with Cystic Fibrosis! 👇🫁🏃♀️
PGCE PE Programme Coordinator (Postgraduate & School-based) & Lecturer of Physical Education and Teacher Education at Plymouth Marjon University || Education Consultant @PEScholar ||
NEW EPISODE - NOW LIVE ‼️ LINK BELOW ⬇️ Episode 32 - Dr Emma Powell - How PE and physical activity can support individuals with cystic fibrosis. Cystic Fibrosis Foundation Cystic Fibrosis Trust PE Scholar https://lnkd.in/e9u-JbxP
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Saas & A.I. Expert | Bilingual Business Development Director | Help businesses to rethink their processes and innovate
🌟 Assisting at the TMX Market Closure and Connecting with Rare Trait Hope 🌟 🔹 TMX Market Closure: Last week, I had the incredible opportunity to assist at the TMX Market Closure. Such an exciting moment to close the markets! 📈 🔹 Rare Trait Hope Fund: During the same event, I had the privilege of meeting with Barbara Insley, LL.B, CFA, CIPP/C from Rare Trait Hope, a remarkable fund-raising organization. Their mission? To invest in gene therapy for rare diseases. Specifically, they’re working on a groundbreaking treatment for Aspartylglucosaminuria (AGU), a fatal neurodegenerative disease that affects children. 🧬 🌍 The Power of Unity: One quote that stayed in my mind: It is only a fatal disease until we find a cure for it. Reflecting on last week's experiences, I’m reminded of the immense impact we can make when we come together. Whether it’s closing financial markets or advancing medical research, human collaboration knows no bounds. Let’s continue to support initiatives that drive positive change! 🤝 https://lnkd.in/gUvhhBGp #TMXMarketClosure #RareDiseaseResearch #GeneTherapy #HumanCollaboration
Rare Trait Hope Society Closes the Market Thursday, April 11, 2024
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LUPUS BLOG: Throughout #LupusAwarenessMonth, we will be spotlighting community members who have bravely shared their #lupus journeys with us. Read more about "M's" journey here: https://lnkd.in/gAiCw5Rx
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https://lnkd.in/e9nVj6iA Boy am I slackin'. Finally have more than 20 minutes to sit down and record something for the channel. Hopefully you find it interesting! We briefly discuss the top two protozoa that cause hemolytic anemia in dogs and cats and touch base on two emerging protozoa. P.S. I am trying to keep these under 20 minutes so you don't fall asleep, but let me know what you think! New video on Smoke Inhalation to come soon!!
POP goes the red blood cell (protozoal hemolytic anemia)
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Have a birthday coming up? These 8 states are putting something on your plate that isn't birthday cake. Click here to read more: https://lnkd.in/dt4ZcaU9 #GeneChat #GeneticCounseling
These 8 states want to send you a birthday “gift” 😑 — Meet Elsie | Licensing Solutions for Genetic Counselors
meetelsie.com
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Do children inherit skill genes from their parents? Find out below!
Check me outparentingandgrowth
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Spotlight the Night: An Interview with Hy Levitsky, Century's President of R&D and Seattle Light the Night Fundraising Team Lead
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Spotlight the Night: An Interview with Greg Russotti, Century's CTO and Philadelphia Light the Night Fundraising Team Lead
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